Still Here
Well, work has been as crazy as I had predicted. Last week I left the house every day by 6am and didn't get home before 6pm even once :( To top it off, last weekend was my Reserve weekend, so I was into my 12th day of straight work with no break. Not fun! In slightly better work news, although I will continue to be so busy I hardly have time to breathe, I am going to be heading to Germany for a week in support of this project. I had hoped to be able to take a day or two additional so I could swing up to Amsterdam to see my lil' sis and fiance, but I think I'm going to have to bank on them possibly having time to come down to Frankfort to see me :(
In other news, we had an update meeting with Early Steps today to talk about A's transition from the ES program (0-3 years) to FDLRS, which is FL's program from kids aged 3 and up. This was just a preliminary meeting to get the paperwork started, but I did find out that even if he does qualify for services (which I have no doubt he will) there will be a three month gap from the time he turns 3 in June until school starts in late August where he won't be covered by ES or FDLRS. My ES coordinator is going to try and help us secure some funding from other sources, but I have a bad feeling I make too much money to qualify for any special funding. So there's an extra 3mos of $$ we're going to have to sock away for A's therapy *le sigh* The good news is that FDLRS covers the cost of pre-K and transportation (yes, he will ride the short bus, lol!), so once school starts we won't have to worry as much. A is due for his 6-month eval in Jan, so we'll get a formal assessment then of how he's progressed since he started therapy in July.
In my personal opinion A has made huge strides, but he still has a long, long way to go. He started out with no words and is now up to about 20 or so recognizable words, even more if you count sounds (e.g. he says doo doo for train, ruff ruff for dog, mao mao for cat, teet teet for bird). He still has a very hard time imitating sounds. If I tell him something is yellow, he repeats ee-ooo. He also uses sounds that are easier for him to say to describe lots of things. He calls trains doodoos (he can't say choo choo) but he also calls Scooby Doo, doo doo. He calls everything a truck (guck because he can't say the tr sound) whether it's a car, truck, bus or train. On the positive side, he is definitely trying to use language and those of us that are around him a lot can understand what he needs based upon a combination of his sounds and other cues. For example, if he's standing in the kitchen or pointing at the fridge and says, "Anna mek," I know he's saying, "I want milk." He also uses some signs, although those are pretty infrequent. I plan to start using the Baby Signing Time DVDs again since he seems more open to them now.
Our GF diet has kind of fallen to the wayside recently. It was very hard to get Tim's Grandma (who watches him during the day) to comprehend the idea of the GF diet, and her mistakes made it kind of for naught. No matter how hard I try to keep him on the diet, if she accidentally gives him a cookie or some other "no" food, all that time, effort and money (going GF is expensive!) goes out the window and you start the timeline all over again. Our care plan may change starting next year, so we'll try again when we have a little more control!
In other news, we had an update meeting with Early Steps today to talk about A's transition from the ES program (0-3 years) to FDLRS, which is FL's program from kids aged 3 and up. This was just a preliminary meeting to get the paperwork started, but I did find out that even if he does qualify for services (which I have no doubt he will) there will be a three month gap from the time he turns 3 in June until school starts in late August where he won't be covered by ES or FDLRS. My ES coordinator is going to try and help us secure some funding from other sources, but I have a bad feeling I make too much money to qualify for any special funding. So there's an extra 3mos of $$ we're going to have to sock away for A's therapy *le sigh* The good news is that FDLRS covers the cost of pre-K and transportation (yes, he will ride the short bus, lol!), so once school starts we won't have to worry as much. A is due for his 6-month eval in Jan, so we'll get a formal assessment then of how he's progressed since he started therapy in July.
In my personal opinion A has made huge strides, but he still has a long, long way to go. He started out with no words and is now up to about 20 or so recognizable words, even more if you count sounds (e.g. he says doo doo for train, ruff ruff for dog, mao mao for cat, teet teet for bird). He still has a very hard time imitating sounds. If I tell him something is yellow, he repeats ee-ooo. He also uses sounds that are easier for him to say to describe lots of things. He calls trains doodoos (he can't say choo choo) but he also calls Scooby Doo, doo doo. He calls everything a truck (guck because he can't say the tr sound) whether it's a car, truck, bus or train. On the positive side, he is definitely trying to use language and those of us that are around him a lot can understand what he needs based upon a combination of his sounds and other cues. For example, if he's standing in the kitchen or pointing at the fridge and says, "Anna mek," I know he's saying, "I want milk." He also uses some signs, although those are pretty infrequent. I plan to start using the Baby Signing Time DVDs again since he seems more open to them now.
Our GF diet has kind of fallen to the wayside recently. It was very hard to get Tim's Grandma (who watches him during the day) to comprehend the idea of the GF diet, and her mistakes made it kind of for naught. No matter how hard I try to keep him on the diet, if she accidentally gives him a cookie or some other "no" food, all that time, effort and money (going GF is expensive!) goes out the window and you start the timeline all over again. Our care plan may change starting next year, so we'll try again when we have a little more control!
posted by Pulisha @ 11:23 AM
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